Sue P’s Story
While navigating her diagnosis with multiple sclerosis, Sue aspires to uplift and inspire other patients through her community activities and involvement with the National MS Society.
For much of my early life, I faced unexplained symptoms that left me searching for answers. It began in my late 20s when my left foot would occasionally become paralyzed without any clear cause. Throughout my 30s and 40s, I experienced a range of neurological symptoms, each as mysterious as the last, yet none could be definitively explained. It wasn’t until my early 50s, during a work meeting, that the pieces of the puzzle started to come together. I suddenly developed persistent double vision, and this episode ultimately led to a diagnosis of multiple sclerosis, shedding light on the challenges I had been facing for decades.
Throughout this journey, I’ve been incredibly fortunate to connect with professionals who’ve guided me every step of the way. Finding The Elliot Lewis Center for Multiple Sclerosis Care was a true turning point. I began my care with Dr. Lathi and am now under the exceptional care of Dr. Katz. Their responsiveness is unparalleled—when I encounter a problem, their response time is lightning fast. I used to marvel, “Who does that?”. What I appreciate most is that they care about all of me—not just my MS symptoms but my overall well-being. They always keep me hopeful, too. During a recent visit for my infusion and office visit, I learned about a phase III trial for a promising drug for secondary progressive MS. Knowing I have such a dedicated team supporting me keeps me grounded and optimistic about the future.
While I don’t do everything I used to before my diagnosis, in many ways, I do more. I’ve developed a profound empathy for others facing their own battles, understanding the kind of support they need. Living with MS has given me new perspectives; I’m appreciative for the chance to be there for others in ways I never imagined. I’m so grateful that my husband is the most thoughtful partner that I could ever have imagined, always having my back and one step ahead, anticipating my needs.
This gracious perspective has inspired me to give back. I’m proud to support the South Shore Community Action Council, home to the largest food distribution center on the South Shore.
I’m grateful for my ability to remain involved with golf, an activity I dearly love. While I’m not as active on the course as I once was, I’ve embraced a leadership role in our community’s nine-hole golf league. It’s fun to stay connected to the game and the community.
This year marks the 10th anniversary of my diagnosis. In those early days, I turned to the National Multiple Sclerosis Society for guidance, unsure of what the future held. They provided not only crucial information but also compassion and understanding. I asked them for help on how to explain my diagnosis to my then tween-aged children, a conversation I had dreaded but knew was necessary. Their support and resources helped me find the right words, giving me the strength to face this new reality alongside my family.
Fundraising for MS is another privilege of mine. Recently, I had the opportunity to participate in the National Multiple Sclerosis Society’s 20th anniversary Fashion Plates event, where I joined 12 other incredible women with multiple sclerosis – a number of whom are also patients at The Elliot Lewis Center, to raise awareness and funds for MS. When I first attended this event as a guest in 2014, I was newly diagnosed and uncertain about the future. 10 years later, and modeling for the second year in a row, I felt a renewed sense of empowerment. Sharing the stage with other women who also live with MS reminded me of our collective resilience and our commitment to living full lives despite the obstacles we face. Together, we inspire and uplift one another, showing that even though MS affects each of us differently, we are united in our strength and determination.
I’m so pleased to have The Elliot Lewis Center as such an important piece of my journey!
